Newborn DNA Storage

Have any of you been following this whole “newborn DNA storage” stuff? On Wed we got the news that the “Court Backs Families In Handling Of Newborn Blood.”

First of all, I’m another person who didn’t know this was happening. I wonder how long it’s been going on. I guess I’m probably in the camp that says if it’s done for testing for potential problems with my baby and then taken and used for studies, I’m okay with that. But it does seem somewhat creepy to me to keep it and store it like that. It almost sounds like the makings of a Stephen King movie.

Where do you stand on it and did you know this went on? You guys all have young kids. Did you know this?

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4 Responses to Newborn DNA Storage

  1. SKL says:

    No, I did not know this was going on. I don’t know how many states are doing it – the article seemed to be only about Minnesota. But of course it would not surprise me if it were more widespread.

    I guess on one level, it sounds like “no big deal.” But on the other hand, the very fact that they are doing this so “quietly” unsettles me. I can understand allowing parents to opt for a blood test to inform the parents of DNA-related issues. But I agree that parents who want to participate in research projects should specifically opt in, and only with full knowledge of what’s going to be done with the samples.

    I can think of all kinds of good uses, and a few sinister uses, of my kids’ DNA. But my kids are not government property, any more than I am. I have been asked several times to allow my kids to be fingerprinted for free at daycare. I always refuse. I just don’t see any good reason for the government to have my innocent kids’ fingerprints. Even more so with their DNA. If you think about it, DNA could be used for targeted germ warfare and eugenics and so on. And you know once it’s in the government’s hands, it could easily get hacked into and so on. Will the national health service use it to determine which humans are worthy of comprehensive medical care? I just don’t like it.

  2. Laura says:

    I hate it, for many of the reasons that SKL enumerated. The very first thing that popped into my head was “what if they clone him?” First off, one of him is enough!! Second, say they DO clone him. What then? Do they call me and tell me that I have another son? Because that would be my son. And I don’t want that child going to someone else. It’s callous to say, but if I wanted to give a child up for adoption, I would have. That idea – of someone creating a child with my biological matter, a “brother” to my son – out there and not mine would absolutely kill me.

    And then another thought occurred.I don’t trust government for a nanosecond not to get in bed with business – crooked or otherwise. So then they do, and they sell/share my son’s DNA with that company, who develops a cure for cancer. That company now makes billions of dollars a second. Using my son’s biological material. And they don’t tell him. So now they keep every cent of that money, and the only possible way that they could make it was with his material.

    I get the “good” that could be done with it. But it should not be done ‘under the table’ and without parents’ permission. That is flat out wrong.

    And for the record, I’m sure that Josh’s is out there somewhere… because they were probably doing this when he was born, and I didn’t know about it.

  3. Joy says:

    I pretty much agree with you two. Paul said “what’s the big deal” and I agree with that on the testing for things for either my baby or for studies for mankind. The whole cloning thing came to mind as well as it’s just creepy that they have all this DNA sitting in warehouses.

    The other thing that bothers me the most is we as parents aren’t told or given the option of this. How do we opt out of something that we don’t know is going on? What else is going on without our knowledge? Do doctors do anything else to us that we don’t know about???

  4. Nikki says:

    The fact that they were doing it right under our noses without saying, has me a bit nervous. Why so secretive? I had no clue. I think that is something you should know and sign to allow it. I didn’t sign anything, because I didn’t know anything about it! I’m all for research, and DNA is needed for that. I just would like to know, and be given the option to opt out. It is MY child, and he belongs to ME.

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